{"id":14214,"date":"2018-02-01T10:17:12","date_gmt":"2018-02-01T07:17:12","guid":{"rendered":"http:\/\/lorenalupu.com\/blog\/?p=14214"},"modified":"2018-10-23T22:26:31","modified_gmt":"2018-10-23T19:26:31","slug":"ana-si-copiii-autisti","status":"publish","type":"post","link":"https:\/\/lorenalupu.com\/blog\/ana-si-copiii-autisti\/","title":{"rendered":"Ana \u015fi copiii auti\u015fti"},"content":{"rendered":"

C\u00e2nd o cuno\u015fti personal pe Ana Dragu, te treze\u015fti fa\u0163\u0103 \u00een fa\u0163\u0103 cu un om afectuos, tandru \u015fi energic, gata s\u0103-\u0163i lumineze seara cu o ploaie de glume. Apoi afli adev\u0103rurile dureroase. C\u0103 e mama unui b\u0103iat autist. C\u0103, din lips\u0103 de profesioni\u015fti \u00een ora\u015ful \u00een care st\u0103, Bistri\u0163a, s-a dedicat cu totul studiului autismului \u015fi terapiei adecvate. C\u0103, pentru a ajuta al\u0163i copii, a \u00eenfiin\u0163at \u00een 2007 Asocia\u0163ia Autism Europa Bistri\u0163a <\/a><\/strong>, cu scopul de a-i informa \u015fi consilia pe p\u0103rin\u0163i \u015fi de a-i trata pe copii, iar doi ani mai t\u00e2rziu, a fondat \u015fi Centrul “Micul Prin\u0163”, un spa\u0163iu destinat terapiei acestor copii.
\nC\u0103 autorit\u0103\u0163ile, care ar fi trebuit s\u0103 aloce ELE resurse pentru membrii cu probleme ai societ\u0103\u0163ii nu doar c\u0103 nu apreciaz\u0103 efortul privat care s\u0103 compenseze pentru lipsa lor de preocupare, ci, dimpotriv\u0103, \u00eei complic\u0103 via\u0163a. Iar acum, cu Noul Cod Fiscal \u00een bra\u0163e, Ana e pe cale s\u0103 \u00eenchid\u0103 Centrul.<\/p>\n

TROLLYWOOD: S\u0103 \u00eencepem prin a te prezenta. <\/strong><\/em>
\nANA DRAGU: Eu sunt poet, fost jurnalist, un fel de scriitor, \u00een prezent psiholog clinician. Acum 11 ani, fiul meu a fost diagnosticat cu autism.
\n
\nE primul t\u0103u copil?<\/strong><\/em>
\nNu, Mai am o fat\u0103 care face \u00eendat\u0103 18 ani, sopran\u0103. S\u0103n\u0103toas\u0103.\u00a0 M\u0103 rog, s\u0103n\u0103toas\u0103, e depresiv\u0103 \u0219i ea ca to\u021bi arti\u0219tii la adolescen\u021b\u0103.
\nAm fost c\u0103s\u0103torit\u0103 de dou\u0103 ori.\u00a0 La 23 de ani cu tat\u0103l Alexei (fiica mea). Am n\u0103scut-o \u00een Bucure\u0219ti, c\u00e2nd avea 2 ani am divor\u021bat \u0219i m-am mutat \u00eenapoi la Bistri\u021ba.\u00a0 Aici m-am rec\u0103s\u0103torit cu un rocker pe criterii de frumuse\u021be \u0219i depresie.
\nEl dorea neap\u0103rat copil, eu nu, dintr-un motiv simplu: cu prima sarcin\u0103 (Alexa) am stat \u00een spital 6 luni, \u00een pat. Ceva incontinen\u021b\u0103 cervical\u0103.
\n\u015ei \u0219tiam c\u0103, dac\u0103 repet, am toate \u0219ansele s\u0103 stau \u00een spital c\u00e2teva luni.\u00a0 Nu voiam s\u0103 o las singur\u0103 pe Alexa. C\u00e2nd, inevitabil, am r\u0103mas \u00eens\u0103rcinat\u0103, ea avea trei ani \u0219i ceva.<\/p>\n

A doua na\u015ftere cum a fost?<\/em><\/strong>
\nAm stat tot cinci luni \u00een spital,\u00a0f\u0103r\u0103 posibilitatea de a circula altfel dec\u00e2t \u00een scaun cu rotile. Problema nu era la copii, ci eu aveam incontinen\u021b\u0103 cervical\u0103 ( asta \u00eenseamn\u0103 c\u0103 se deschide colul uterin \u00eenainte de vreme).\u00a0 \u015ei acum \u00eei cert c\u0103 s-au gr\u0103bit s\u0103 vin\u0103 pe lume.<\/p>\n

Mai degrab\u0103 tu te-ai gr\u0103bit s\u0103 scapi de ei. :)))) Colul t\u0103u uterin se deschidea repede, nu ei se gr\u0103beau, s\u0103r\u0103cu\u0163ii.<\/em><\/strong>
\nS\u0103 nu-i spui asta Alexei! :)))<\/p>\n

Fiul t\u0103u, Eduard, (copilul suferind de autism, n. r.) s-a n\u0103scut prematur?<\/strong><\/em>
\nNu.\u00a0 Aproape la termen,\u00a0poate cu 2 s\u0103pt\u0103m\u00e2ni mai repede. S-a n\u0103scut prin cezarian\u0103, oricum. Dup\u0103 prima na\u0219tere natural\u0103,\u00a0care mi-a f\u0103cut franjuri colul,\u00a0nu mai puteam na\u0219te normal, practic mi-au f\u0103cut cerclaj la 3 luni de sarcin\u0103. Asta \u00eenseamn\u0103 c\u0103 au cusut colul s\u0103 nu pice copilul. E\u00a0o procedur\u0103 care se face uneori, c\u00e2nd e risc de pierdere a sarcinii.<\/p>\n

La na\u015ftere, Eduard a fost diagnosticat ca s\u0103n\u0103tos?<\/strong><\/em>
\nDa, Eduard s-a n\u0103scut aparent s\u0103n\u0103tos, a avut APGAR 9. Eu \u00eens\u0103 nu, c\u0103 am f\u0103cut edem cerebral de la anestezie \u0219i nu am putut ridica capul de pe pern\u0103 dou\u0103 s\u0103pt\u0103m\u00e2ni de durere.<\/p>\n

C\u00e2nd au ap\u0103rut\u00a0 simptomele autismului \u015fi cum se prezentau?\u00a0<\/strong><\/em>
\n\u00cen jurul v\u00e2rstei de 1 an jumate a \u00eenceput, nu \u0219tiu cum, c\u00e2nd \u00eel luam \u00een bra\u021be, s\u0103 \u00ee\u0219i ridice genunchii la piept ca \u0219i cum bloca \u00eembr\u0103\u021bi\u0219area. S\u0103 nu m\u0103n\u00e2nce dec\u00e2t chestii albe (t\u0103ie\u021bei de pild\u0103). S\u0103 nu \u00eentoarc\u0103 capul c\u00e2nd \u00eel strigam. Mai nasol,\u00a0c\u00e2nd \u00eei c\u00e2ntam (\u00eei c\u00e2ntam mult noaptea) \u0219i falsam se zguduia de crize de pl\u00e2ns.
\nAm poz\u0103 cu el,\u00a0c\u00e2nd a \u00eemplinit un an,\u00a0\u0219i corul de pro\u0219ti a \u00eenceput s\u0103 \u00eei c\u00e2nte “la mul\u0163i ani”. \u00cemi amintesc cu claritate c\u0103 a \u00eenceput s\u0103 urle din r\u0103sputeri,\u00a0\u00een loc s\u0103 se bucure.\u00a0 Atunci nu am \u00een\u021beles de ce s-a speriat,\u00a0abia dup\u0103 c\u00e2\u021biva ani am priceput c\u0103 are auz absolut.<\/p>\n

La un an deja auzea o not\u0103 fals\u0103?<\/strong><\/em>
\n\u015ei \u00eel deranja c\u0103 falsam, probabil, \u00een cor, da. La urm\u0103toarele zile de na\u0219tere,\u00a0am dat ordin pe unitate s\u0103 i se c\u00e2nte “La mul\u0163i ani” mimat,\u00a0f\u0103r\u0103 sunet. Multe zile de na\u0219tere, vreo zece,\u00a0am c\u00e2ntat \u00een surdin\u0103 “La mul\u021bi ani”. Acum, ne d\u0103 el tonul\u00a0\u0219i ne suport\u0103. Accept\u0103 c\u0103 unii oameni falseaz\u0103 :)))<\/p>\n

Am \u00een\u0163eles. Ce alte aspecte ie\u015fite din comun au ap\u0103rut \u00een comportamentul lui, c\u00e2t era mic?<\/strong><\/em>
\n\u015etii cum copiii au o juc\u0103rie de ata\u0219ament?\u00a0 Un ursule\u021b, o p\u0103pu\u0219ic\u0103,\u00a0un tren?\u00a0 Well, Dudu nu se desp\u0103r\u021bea de un UMERA\u0218.<\/p>\n

Unul anume? \u00cel identifica?<\/strong><\/em>
\nDa.\u00a0 Oricum, au fost multe semne. Ca bebelu\u0219, nu pl\u00e2ngea de foame sau de sete. St\u0103tea multe ore \u00een p\u0103tu\u021b \u0219i privea particulele de praf \u00een lumin\u0103. \u015etiu asta pentru c\u0103 eu, dup\u0103 c\u00e2teva luni de spitalizare la pat, eram atrofiat\u0103, \u0219i \u00een prima lun\u0103 dup\u0103 na\u0219tere, aveam dificult\u0103\u021bi musculare \u0219i alegeam des s\u0103 m\u0103 deplasez \u00een patru labe spre p\u0103tu\u021b diminea\u021ba.
\nDar lunile alea au trecut \u0219i, \u00een jurul v\u00e2rstei de 1 an jumate,\u00a0deja comportamentul lui era diferit de cel al copiilor tipici. Mama mea spune c\u0103 a trecut o dat\u0103 pe la mine \u0219i i-a\u0219 fi spus ceva de genul: “mam\u0103, copilul \u0103sta nu e normal”. Dar eu nu \u00eemi amintesc,\u00a0 deci e folclor.<\/p>\n

Ce mai era neobi\u015fnuit?<\/strong><\/em>
\nTot! Alimenta\u021bie, socializare, comunicare,\u00a0comportament. Alinia obsesiv obiecte, \u00ee\u0219i flutura m\u00e2inile,\u00a0nu avea contact vizual, tr\u00e2ntea \u00een permanen\u021b\u0103 u\u0219ile, nu suporta multe zgomote, nu vorbea \u0219i, mai na\u0219pa, nu \u00een\u021belegea ce vrei de la el.<\/p>\n

C\u00e2nd ai decis c\u0103 e cazul s\u0103-l duci la o consulta\u0163ie?<\/strong><\/em>
\nLa un an \u0219i opt luni, am vorbit cu mama despre el \u0219i am decis s\u0103 facem fiecare o list\u0103 cu ce ni se pare aiurea,\u00a0separat. Eu, mama \u0219i so\u021bul mamei,\u00a0care e un anticar francez. Apoi s\u0103 confrunt\u0103m listele,\u00a0s\u0103 vedem dac\u0103 p\u0103rerile sunt \u00eendrept\u0103\u0163ite.<\/p>\n

\u015ei tat\u0103l?<\/strong><\/em>
\nTat\u0103l nu.\u00a0\ud83d\ude42 Tat\u0103l avea o perioad\u0103 extrem de proast\u0103. Dup\u0103 diagnostic, am \u0219i divor\u021bat pentru c\u0103 eu am decis c\u0103 bruma de energie pe care o am
\ntrebuie investit\u0103 \u00een copil,\u00a0nu \u00een certuri.<\/p>\n

Revenind: la un an \u015fi opt luni, a\u0163i f\u0103cut listele.<\/strong><\/em>
\nDa,\u00a0 \u0219i am g\u0103sit prea multe observa\u021bii comune. Astfel \u00eenc\u00e2t Michel, so\u021bul mamei mele,\u00a0a fost primul care a declarat “c’est pas normal”. \u015ei,\u00a0pentru c\u0103 ertam corespondent PRO TV \u015fi\u00a0Rom\u00e2nia Liber\u0103, plus lucram \u00een\u00a0presa local\u0103,\u00a0am mobilizat toate resursele s\u0103 g\u0103sesc oameni, psihologi,\u00a0care s\u0103 \u00eemi spun\u0103 ce nu e \u00een regul\u0103.\u00a0 \u00cemi amintesc cu claritate orbitoare cum am mers la cea mai \u0219mecher\u0103 funda\u021bie din Bistri\u021ba, la o domnuc\u0103 care a ridicat din umeri \u0219i m-a trimis la Cluj.
\nE ca \u0219i cum te-ai duce cu o bub\u0103 la derma,\u00a0\u0219i \u0103ia \u021bi-ar spune c\u0103 nu \u0219tiu ce e aia, c\u0103 n-au mai v\u0103zut.<\/p>\n

\u015ei la Cluj?<\/strong><\/em>
\nM-am dus la Cluj la o psiholoag\u0103,\u00a0care mi-a zis c\u0103 e retardat, deoarece \u00ee\u0219i suge degetul. Bine, i-am explicat c\u0103 tot neamul nostru \u0219i-a supt degetul p\u00e2n\u0103 la v\u00e2rste \u00eenaintate,\u00a0\u0219i suntem func\u021bionali cognitiv, \u00een limite decente.<\/p>\n

Ce diagnostic de \u0163a\u0163a Mari\u0163a!\u00a0<\/strong><\/em>
\nLucram la Rom\u00e2nia Liber\u0103. O\u00a0coleg\u0103 mi-a spus de o tip\u0103, Milena Prun\u0103, din Cluj, care avea un copil autist \u0219i deschidea o funda\u021bie. Bine\u00een\u021beles, ne-a pus \u00een leg\u0103tur\u0103. Ea mi-a spus c\u0103 Eduard e autist,\u00a0iar eu am negat ca la carte c\u00e2teva luni. P\u00e2n\u0103 am ajuns la un \u0219ef de clinica de psihiatrie infantil\u0103.<\/p>\n

Unde?<\/strong><\/em>
\nNPI Cluj. Am ajuns la o somitate \u00een materie la momentul respectiv, profesorul Lupu. Nu am putut s\u0103 \u00eel bag pe Dudu \u00een clinic\u0103, c\u0103 se proptea cu m\u00e2inile \u00een cadrul u\u0219ii. Se opunea intr\u0103rii \u00een orice spa\u021bii necunoscute. A\u00a0cobor\u00e2t \u0219eful clinicii, am dat dou\u0103 ture de parc interior \u00eempreun\u0103, a urcat \u00eenapoi \u0219i a venit o rezident\u0103 cu h\u00e2rtia cu diagnosticul \u0219i re\u021beta. Autism infantil.<\/p>\n

Foarte delicat modul lui de a rezolva problema.<\/strong><\/em>
\n\u015etii ce e trist? De\u0219i a p\u0103rut expeditiv,\u00a0 a pus diagnosticul corect \u00een 15 minute de plimbare. Desigur,\u00a0 am mai \u00eencercat s\u0103 \u00eel combat c\u00e2teva luni.\u00a0 Dar nu am comb\u0103tut pasiv. Mi-am f\u0103cut eu un calcul. Dac\u0103 copilul e autist \u0219i \u00eencep s\u0103 lucrez cu el, \u00eel ajut. Dac\u0103 nu e autist \u0219i \u00eencep s\u0103 lucrez cu el,\u00a0nu \u00eei stric\u0103.
\nAm \u00eenceput RAPID s\u0103 m\u0103 informez care sunt terapiile validate \u0219tiin\u021bific pentru autism,\u00a0\u00een state normale la cap. Am citit. M-am apucat de psihologie. Am trimis zeci de mailuri c\u0103tre toti cercet\u0103torii rom\u00e2ni pe care \u00eei g\u0103seam asociati cu cuv\u00e2ntul “autism”.
\nAm dat de Sergiu Pa\u0219ca, a\u0219a. Cel mai mare cercet\u0103tor \u00een domeniul autismului. Acum e \u00een State. Pe\u00a0atunci, era student. El mi-a recomandat
\nterapie comportamental\u0103.\u00a0 Am \u00eenceput s\u0103 \u00eenv\u0103\u021b \u0219i s\u0103 aplic.\u00a0C\u0102 NU AVEA CINE ALTCINEVA.
\nEu eram o ziarist\u0103, mam\u0103 singur\u0103 cu doi copii, unul autist. Nu aveam bani s\u0103 pl\u0103tesc oricum pe altcineva.<\/p>\n

C\u00e2te ore pe zi ai lucrat cu copilul?\u00a0<\/em><\/strong>
\nDudu a f\u0103cut, 5 ani de zile,\u00a0terapie non stop. Doar c\u00e2nd dormea nu lucra cineva cu el. S\u0103 nu crezi c\u0103 trebuie s\u0103 fii savant de renume mondial
\nca s\u0103 lucrezi. Trebuie doar s\u0103 urm\u0103re\u0219ti ni\u0219te programe, s\u0103 VREI \u0219i s\u0103 nu fii retardat. Sunt protocoale de terapie comportamental\u0103. Dac\u0103 nu e\u0219ti bolnav psihic \u0219i nici cu retard,\u00a0le \u00eenve\u021bi \u0219i le aplici.<\/p>\n

\u015ei cum mai apucai s\u0103 mergi \u015fi la job?<\/strong><\/em>
\nP\u0103i, eu l-am c\u0103rat ani de zile pe Dudu cu mine la serviciu.\u00a0 Am colegi care \u00ee\u0219i amintesc cum \u00eel duceam \u00een lighean cu pern\u0103,\u00a0c\u0103 nu aveam bani de landou modern.\u00a0 \u015ei am angajat o bon\u0103:\u00a0o fat\u0103 care de la 15 ani a lucrat \u00een Serbia, ca s\u0103 fug\u0103 de s\u0103r\u0103cia de acas\u0103,\u00a0din satul ei, Bichigiu. \u00cen Serbia, a crescut copiii unor doctori.
\nFata asta avea 19 ani \u0219i era \u00eentoars\u0103 \u00een Rom\u00e2nia,\u00a0s\u0103 fac\u0103 facultate \u00een limba rom\u00e2n\u0103. Mare patrioat\u0103. \u00cen prealabil, crescuse doi copii normali.
\nEa c\u0103uta de lucru,\u00a0ca s\u0103 poat\u0103 face facultate. Are \u0219i ea povestea ei despre cum a acceptat s\u0103 fie bon\u0103 la copilul \u0103la scheletic a lu’ doamna aia ziarist\u0103 \u00eenfico\u0219\u0103toare.
\nAzi e \u0219ef\u0103 de centru la mine \u0219i-a f\u0103cut \u0219i facultatea,\u00a0\u0219i masteratul. \u015ei e prizoniera copiilor cu autism de la centrul meu din Bistri\u021ba.<\/p>\n

Ea continua terapia cu copilul c\u00e2t erai tu la job?\u00a0<\/strong><\/em>
\nEa f\u0103cea ziua cu el activit\u0103\u021bile \u0219i programele pe care i le l\u0103sam eu scrise seara.\u00a0\u0218i \u00eemi scria ce a f\u0103cut – pe h\u00e2rtie.\u00a0Iar c\u00e2nd veneam acas\u0103 \u00eel preluam eu \u015fi lucram cu el p\u00e2n\u0103 seara, diverse activit\u0103\u021bi de stimulare a limbajului, comunic\u0103rii, socializ\u0103rii, autoservire.\u00a0M\u0103 rog.\u00a0Tot ce ar fi trebuit s\u0103 \u0219tie\/s\u0103 fac\u0103 \u0219i nu \u0219tia.
\nEa mergea cu el \u0219i la gr\u0103di.\u00a0\u00cent\u00e2i cinci minute pe zi, c\u0103 at\u00e2t suporta. A crescut treptat durata, p\u00e2n\u0103 c\u00e2nd, \u00een grupa mare, st\u0103teau tot programul \u00eempreun\u0103.<\/p>\n

Acest program intens de multe ore pe zi nu era obositor pentru copil?\u00a0<\/strong><\/em>
\nObositor probabil ca era, dar totul se f\u0103cea sub form\u0103 de joac\u0103.\u00a0Nu \u0219tia el la trei ani c\u0103 Ia e terapie \u015fi ar trebui s\u0103 fie obosit.\u00a0Erau activit\u0103\u021bi dup\u0103 alte activit\u0103\u0163i, toate structurate pe sistemul de \u00eent\u0103rire a comportamentelor pe care voiam s\u0103 le vedem mai des \u0219i descurajarea celor c\u0103rora voiam s\u0103 le reducem frecven\u021ba \u015fi intensitatea.\u00a0Atunci nu era obosit.\u00a0Acum este.\u00a0\u00cen real world.<\/p>\n

Cred.<\/em> \u015ei la pian c\u00e2nd \u015fi cum l-ai dat?<\/strong>
\nAm \u00eenceput pe la 4 ani, dar nu cu profesor.\u00a0 Cu mine.\u00a0 Eu am f\u0103cut pian opt ani. \u015ei mi-am luat pianin\u0103, s\u0103\u00a0c\u00e2nt eu, ca s\u0103 am ceva pl\u0103cut de f\u0103cut.<\/p>\n

Cum era ca elev?<\/strong><\/em>
\nP\u0103i, primele dou\u0103 luni dup\u0103 ce am luat pianina,\u00a0nu a mai intrat \u00een camera respectiv\u0103, \u00een\u00a0care am operat modific\u0103ri de design. \u015ei i-am stricat imaginea de ansamblu.\u00a0Apoi, \u00eencet, ne-am jucat. Am \u00eenv\u0103\u0163at notele, am descoperit c\u0103 are auz absolut. \u015ei apoi, la \u015fase ani i-am luat un prof.<\/p>\n

I-a fost dificil profului s\u0103 lucreze cu el?<\/strong><\/em>
\nDa.\u00a0Profii nu \u00een\u0163elegeau cum poate exista un copil care nu reac\u0163ioneaz\u0103 la comenzile lor, nu are contact vizual, nu \u00een\u0163elege dec\u00e2t dac\u0103 \u00eei demonstrezi fizic.\u00a0A fost \u015fi e greu, dar p\u00e2n\u0103 la urm\u0103, la.\u015fcoal\u0103, dup\u0103 ce nu a vrut nici un profesor, l-a acceptat fosta mea prof\u0103 de pian. Care\u00a0lucreaz\u0103 cu el foarte bine azi, dar, \u00een acela\u015fi timp, a trebuit s\u0103 se adapteze la el, c\u0103 nu mai v\u0103zuse un autist \u00eenainte.
\nA fost noroc cu auzul absolut \u015fi cu faptul c\u0103\u00a0studia \u00een ne\u015ftire la pian.\u00a0Nu \u00eel deranja, fiind o sarcin\u0103 repetitiv\u0103 \u015fi oarecum mecanic\u0103.<\/p>\n

Dimpotriv\u0103, probabil c\u0103 era talentul lui nativ.<\/strong><\/em>
\nSigur, e punctul lui forte. \u015ei zona \u00een care se simte st\u0103p\u00e2n pe situa\u0163ie.<\/p>\n

Poveste\u015fte-mi c\u00e2nd \u0163i-a venit ideea ONG-ului \u015fi ce ai f\u0103cut.<\/strong><\/em>
\nMi-a venit ideea c\u00e2nd a protestat fiic\u0103-mea c\u0103 aduc toat\u0103 ziua al\u021bi copii auti\u0219ti \u00een cas\u0103. Am \u00eenceput s\u0103 lucrez cu alt ziarist, care era la baz\u0103 logoped. \u015ei au \u00eenceput s\u0103 ne caute p\u0103rin\u0163ii altor copii. P\u0103rin\u0163i care nu \u015ftiau nici de terapiile astea validate \u0219tiin\u0163ific, nici ca au drepturi, nici ce s\u0103 fac\u0103 cu copiii.<\/p>\n

Asta c\u00e2nd s-a \u00eent\u00e2mplat?<\/strong><\/em>
\n\u00cen 2007. Am f\u0103cut asocia\u0163ia, apoi am primit un spa\u0163iu cu p\u0103m\u00e2nt pe jos, un fost grajd \u015fi sp\u0103l\u0103torie, \u00een curtea spitalului.\u00a0 Am \u00eenceput s\u0103 facem tot felul de proiecte de renovare.\u00a0Am str\u00e2ns bani. Am amenajat spa\u0163iul. \u015ei c\u00e2nd am terminat, ni l-au luat. \ud83d\ude00
\n\u00cen 2012, spitalul respectiv a\u00a0fost retrocedat, f\u0103r\u0103 s\u0103 fim anun\u0163a\u0163i.\u00a0Deja aveam 20 de copii la terapie, zilnic.
\nApoi, au urmat patru ani de procese, \u00een care am albit cer\u00e2nd s\u0103 \u00eemi dea \u00eenapoi banii investi\u0163i acolo de p\u0103rin\u0163i \u015fi sponsori, ca\u00a0s\u0103 fac rost de alt spa\u0163iu.\u00a0 Ca \u00een final, \u00een 2016 toamna, s\u0103 ne pun\u0103 la dispozi\u0163ie alt spa\u0163iu, ca s\u0103 renun\u0163\u0103m la proces.\u00a0Ceea ce am \u015fi f\u0103cut. Nu ne trebuiau banii, ci un spa\u0163iu adecvat pentru terapie.<\/p>\n

Pfffffffffffff, ce mizerii!\u00a0<\/strong><\/em>
\nDa, acum probabil c\u0103 o\u00a0s\u0103 ne cear\u0103 chirie \u015fi pe \u0103sta, deoarece nu avem statut de utilitate public\u0103.\u00a0De\u015fi avem acreditare, licen\u0163iere \u015fi tot felul de prostii. \u015ei condi\u0163ii impuse de stat ONG-urilor care ofer\u0103 servicii sociale copiilor c\u0103rora statul NU le ofer\u0103 serviciile respective.<\/p>\n

C\u00e2\u0163i copii ave\u0163i \u00een \u00eengrijire?<\/strong><\/em>
\nCam 60.<\/p>\n

Din Bistri\u0163a sau \u015fi din alte p\u0103r\u0163i?<\/strong><\/em>
\nDin jude\u0163 \u015fi din jude\u0163ele limitrofe.\u00a0 Mai vin vara\u00a0 \u00een vacan\u0163\u0103 \u015fi p\u0103rin\u0163i care lucreaz\u0103 \u00een str\u0103in\u0103tate, \u015fi\u00a0 aduc copiii la terapie. La ei,\u00a0to\u021bi cet\u0103\u0163enii sunt egali \u00een drepturi, iar cei cu dizabilit\u0103\u0163i sunt sus\u0163inu\u0163i s\u0103 aib\u0103 vie\u0163i decente.\u00a0Dar la noi, hai, fii u\u015for dezechilibrat, \u015fi o s\u0103 vezi c\u00e2t respect prime\u015fti \u00een societate, \u015fi c\u00e2t sprijin.<\/p>\n

C\u00e2\u0163i oameni lucreaz\u0103 acum \u00een cadrul ONG-ului?<\/strong><\/em>
\nZece. \u015ei opt voluntari, care vin zilnic.<\/p>\n

Care e specialitatea acestor oameni?<\/strong><\/em>
\nLogopezi, psihologi, kinetoterapeut, terapeu\u0163i acredita\u0163i ca tehnicieni comportamentali, asistent social, mediator, psihopedagog, prof de muzic\u0103.<\/p>\n

C\u00e2te ore lucra\u0163i pe zi?<\/strong><\/em>
\nE deschis \u00eentre 8 – 18.\u00a0Uneori p\u00e2n\u0103 la 19. \u00cen intervalul \u0103sta, mereu cineva lucreaz\u0103, nu to\u0163i deodat\u0103.\u00a0O parte merg diminea\u0163a \u00een \u015fcoli \u015fi gr\u0103dini\u0163e, unde \u00eenso\u0163esc copiii, ca s\u0103 \u00eei ajute s\u0103 se integreze.<\/p>\n

Practic, voi nu sunte\u0163i doar o asocia\u0163ie, sunte\u0163i o comunitate.<\/strong><\/em>
\nDa.\u00a0Datorit\u0103 nou\u0103, p\u0103rin\u0163ii pot merge la serviciu, profesorii au sprijin cu copiii atipici cu care nu \u015ftiu ce s\u0103 fac\u0103.<\/p>\n

Cine v\u0103 sus\u0163ine activitatea \u00een prezent?<\/strong><\/em>
\nP\u0103rin\u021bii.\u00a0Mai prindeam sponsoriz\u0103ri de la firme. \u015ei p\u0103rin\u0163ii, \u015fi noi colectam formulare 230 (de redirec\u0163ionare a 2% din impozit, n. r.), din care pl\u0103team terapeu\u0163ii. Dar, conform modific\u0103rilor codului fiscal, firmele nu mai pot sponsoriza deduc\u00e2ndu-\u015fi din impozit sponsorizarea dec\u00e2t dac\u0103 au cifra de afaceri mai mare de un milion de euro.
\nIar formularele nu mai pot fi depuse de ONG-uri, doar direct de contribuabili sau prin \u00eemputernicit. Asta nu e nou\u0103 ca prevedere, dar p\u00e2n\u0103 acum, majoritatea finan\u0163elor acceptau \u015fi depuneri centralizate cu borderouri de c\u0103tre ONG. Practic, noi ajutam p\u0103rin\u0163ii s\u0103 depun\u0103 formularele f\u0103r\u0103 s\u0103 mai stea ei la cozi, la ghi\u015fee ANAF sau la po\u015ft\u0103.<\/p>\n

Ce alte prevederi legale v\u0103 mai afecteaz\u0103?<\/strong><\/em>
\nC\u0103 nu se d\u0103 statut de utilitate public\u0103 ONG-urilor acreditate \u015fi licen\u0163iate, \u015fi ne mai cer un dosar pentru asta, iar criteriile sunt neclare \u015fi p\u00e2n\u0103 acum, acest statut s-a dat mai mult pe pile.
\nEu consider c\u0103, o dat\u0103 ce te-ai acreditat \u015fi \u0163i-ai licen\u0163iat un serviciu social, deja e limpede c\u0103 activitatea ta e de utilitate public\u0103. \u015ei nu e cazul s\u0103 mai faci alt dosar, ca s\u0103 dovede\u015fti ceva ce ai dovedit pe deplin prin ob\u0163inerea acredit\u0103rii \u015fi a licen\u0163ierii.<\/p>\n

\u015ei toate astea v\u0103 oblig\u0103 s\u0103 lua\u0163i \u00een considerare \u00eenchiderea centrului?<\/strong><\/em>
\nAstea, plus faptul c\u0103 nu primim niciun ban de la autorit\u0103\u0163ile locale \u015fi jude\u0163ene.\u00a0S\u0103 fac\u0103 ei.\u00a0S\u0103 ofere ei terapie copiilor.\u00a0C\u0103 eu c\u00e2nd \u00eenchid Centrul, m\u0103\u00a0duc cu to\u021bii \u00een biroul primarului \u0219i al prefectului, \u0219i \u00eei las acolo.<\/p>\n

 <\/p>\n

Pe Ana Dragu o g\u0103si\u0163i aici<\/a>.<\/strong> Site-ul Asocia\u0163iei e aici<\/a>.\u00a0<\/strong>Ana editeaz\u0103 \u015fi prima revist\u0103 din Rom\u00e2nia dedicat\u0103 autismului, iar siteul acesteia e aici<\/a>.<\/strong><\/p>\n

************<\/p>\n

Te prejudiciaz\u0103 \u015fi pe tine prevederile noului Cod Fiscal? Trimite-mi povestea ta pe birou@lorenalupu.com.<\/p>\n","protected":false},"excerpt":{"rendered":"

C\u00e2nd o cuno\u015fti personal pe Ana Dragu, te treze\u015fti fa\u0163\u0103 \u00een fa\u0163\u0103 cu un om afectuos, tandru \u015fi energic, gata s\u0103-\u0163i lumineze seara cu...<\/p>\n","protected":false},"author":2,"featured_media":14216,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2},"jetpack_post_was_ever_published":false},"categories":[1],"tags":[],"class_list":["post-14214","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-spicy"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"https:\/\/i0.wp.com\/lorenalupu.com\/blog\/wp-content\/uploads\/2018\/02\/anadragu-e1517446328129.jpg?fit=936%2C600&ssl=1","jetpack_sharing_enabled":true,"jetpack_likes_enabled":true,"_links":{"self":[{"href":"https:\/\/lorenalupu.com\/blog\/wp-json\/wp\/v2\/posts\/14214","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/lorenalupu.com\/blog\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/lorenalupu.com\/blog\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/lorenalupu.com\/blog\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/lorenalupu.com\/blog\/wp-json\/wp\/v2\/comments?post=14214"}],"version-history":[{"count":8,"href":"https:\/\/lorenalupu.com\/blog\/wp-json\/wp\/v2\/posts\/14214\/revisions"}],"predecessor-version":[{"id":15861,"href":"https:\/\/lorenalupu.com\/blog\/wp-json\/wp\/v2\/posts\/14214\/revisions\/15861"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/lorenalupu.com\/blog\/wp-json\/wp\/v2\/media\/14216"}],"wp:attachment":[{"href":"https:\/\/lorenalupu.com\/blog\/wp-json\/wp\/v2\/media?parent=14214"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/lorenalupu.com\/blog\/wp-json\/wp\/v2\/categories?post=14214"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/lorenalupu.com\/blog\/wp-json\/wp\/v2\/tags?post=14214"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}